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YOUR PERSONALIZED SDM TOOL SUMMARY

Select Your hemophilia Type
Questions for reflection
1
0/125
2
0/125
Statements for Reflection
  • 5
  • 2 8
  • 3 7 10
  • 1 6
  • 4
  • 2 8
  • 4
  • 3 7 10
  • 4
  • 4
  • 4
  • 2 8
  • 4
  • 4
  • 4
  • 4
  • 4
  • 4
  • 4
0 (Not at all) 100 (Very much)
1

I feel tied to (or constrained by) my hemophilia treatment regimen

2

Managing my hemophilia takes a lot of effort

3

My hemophilia is always in the back of my mind

4

I feel adequately protected against bleeds

5

I am concerned about the potential side effects of novel therapies for hemophilia

6

I feel upset about missing significant opportunities because of my hemophilia

7

My hemophilia makes it difficult to keep up a satisfying social life.

8

My hemophilia keeps me from being able to fulfill the roles I expect to be able to do

SHL Factor Therapy - Detailed information
Suggested Questions to Discuss with Your Health Care Team
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1. What treatment types are available to me?

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3. What is the process for switching to a new treatment?

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6. Will I still have to record my treatments?

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8. What will happen in the event of a bleed on this new treatment?

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10. In your opinion, what are the drawbacks compared to my current treatment?