WFH | Shared Decision Making

Welcome

Introduction

Reflection

Education

Summary

YOUR PERSONALIZED SDM TOOL SUMMARY

Select Your hemophilia Type

Hemophilia A

Hemophilia B

Questions for reflection

1

How would you describe the impact of your hemophilia on obtaining your life goals? (Goals related to work, education, family, hobbies, etc.)

0/125

2

Why are you considering a change to your therapy?

0/125

Statements for Reflection

5
2 8
3 7 10
1 6
4
2 8
4
3 7 10
4
4
4
2 8
4
4
4
4
4
4
4

0 (Not at all) 100 (Very much)

1

I feel tied to (or constrained by) my hemophilia treatment regimen

2

Managing my hemophilia takes a lot of effort

3

My hemophilia is always in the back of my mind

4

I feel adequately protected against bleeds

5

I am concerned about the potential side effects of novel therapies for hemophilia

6

I feel upset about missing significant opportunities because of my hemophilia

7

My hemophilia makes it difficult to keep up a satisfying social life.

8

My hemophilia keeps me from being able to fulfill the roles I expect to be able to do

SHL Factor Therapy - Detailed information

Eligibility	Administration
Multiple products that are widely approved	All Ages	An injection into the vein 1-4 times per week		1-2 Times per year and as needed

Eligibility

Administration

Approval Status

Approved Population

Administration & Dosing

Location

Yearly Follow-up Schedule

Multiple products that
are widely approved

All Ages

An injection into the vein 1-4 times per week

1-2

Times per year and as needed

Efficacy		Safety Considerations		Potential Safety Risks
Treated Annual Bleed Rate	Factor Level	Years of Clinical Experience	Adverse Events	Hypersensitivity Reactions	Inhibitors	Thrombotic Events	Elevated Liver Enzymes
1-2	Factor levels increase immediately and decrease rapidly	40+	The most common adverse events are headache, diarrhea, cough, nausea, and joint pain.	Possible	3-5%	Possible

Quality of Life
Psychosocial Burden
Travel Employment/ education Injection schedule Medication Physical activity Treatment efficacy Bleeding risk Joint pain Blood-bone infections (HCV/HIV)* Affected family members and carriers Daily concerns Occasional concerns Little to no concerns